Advocating for yourself

Some sufferers may encounter scepticism or dismissal from their caregivers, underscoring the importance of advocating for yourself and seeking additional support if needed.Your healthcare providers are there to help you, if they aren’t fulfilling this basic requirement of their job then you are entitled to find alternative support.

Unfortunately, pregnancy sickness, particularly hyperemesis gravidarum (HG), remains widely misunderstood, often leaving sufferers undiagnosed or feeling invalidated by loved ones and healthcare providers about the severity of their symptoms. Communicating the gravity of HG to those around you can be challenging, but it's essential to remember that you haven't brought this illness upon yourself and deserve to be treated with compassion and understanding.

Having a brief explanation prepared for inquiries about your pregnancy or condition can be beneficial. Informing others that HG is distinct from typical ‘morning sickness’ and is relatively rare can help convey the seriousness of your situation.

Discussing HG with family and close friends may also pose difficulties, as they may feel helpless in assisting. Expressing gratitude for their support and emphasising the importance of their continued presence can foster a sense of solidarity during this challenging time. Additionally, being candid with healthcare professionals about your symptoms is crucial.

Providing resources like this website and sharing relevant information can aid in educating others about HG. Bringing along a symptom diary, if you’ve kept one, can further illustrate the severity of your condition during medical appointments. If you feel your concerns are not being addressed, don't hesitate to escalate the situation by requesting to speak with a patient liaison or management representative. And remember, if you're unable to advocate for yourself or feel at a loss, don't hesitate to reach out to us for support.

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Tips for advocating for yourself

Advocating for yourself with your GP, obstetrician, midwife or in the Emergency Department can be daunting - especially if you’re unwell. Hopefully, these tips help you feel more empowered:

Take some information about NVP or HG to your consultations. Hyperemesis Australia has created this handy printable for you as a starting point
Go to the consultation with someone who has seen first-hand what you are going through and ask them to share what they’ve witnessed
Write down as much information as possible about your food and fluid intake, urine output, weight loss, how many times you’ve vomited or felt nauseous in the previous 24 hours. This printable is a good way to track things
Print out a copy of the SOMANZ treatment guidelines and ask to receive the recommended treatment
Remember that you are entitled to receive treatment, care and support - be as assertive as you can be, and if you’re too unwell take someone with you who will fight for your care
Ask your health care professional to visit this website or contact us
Ultimately, if you don’t feel you are receiving the care and treatment you need it’s okay to change practitioners.